Woke Up - Air Hunger

[Jlynn]

Thinking of you Pete. You have to take care of yourself first so putting your projects off for a minute is fine. Pete first. That should be your motto. Thank you for sharing you brave, brave man.

 

[starente15]

Hope you've found some relief Pete!

 

[tripete]

the gava was no help. ended up in ER. i am now on non opeoid med it is helping legs but i still feel aweful. this disease is hell. i just sit in my chair struggling to breathe with tears watching the idiot box.

 

[Narrowminded]

Pete, I’m continue to send prayers for your comfort and peace and also strength for you and Cary.

Hugs,

Sue

 

[KateEmerson]

Thinking of you and Carey Pete. Hoping they can find something to give you comfort. Kate

 

[MarieLaure]

May they find a way to ease your pain and help you breathe. May all the sky’angels and all the earth’s good feelings come your way to comfort and love you.

 

[wishmobbing]

Pete, you're so unlucky with medication. Hope for something helpful coming up!

 

[Buckhorn]

Pete, I'm sorry for what you are enduring. I wish there was some relief for you. I hope the non-opiod med helps you. ALS is a terribly cruel disease and I am sorry for the hell it is putting you thru.

 

[GregK]

I don't comment often, Pete, but your humanity and insight is astounding. Never doubt that you have and are leaving a mark on your fellow pALS, this forum and the world. I am utterly sincere.

To practical matters, it's been suggested previously but please consider medical cannabis. It helps with pain, cramping and spasticity. With few if any side effects.

 

[KimT]

Pete,

I've had pain since day 1. I cannot tolerate morphine but do tolerate Oxy. I agree with Greg that medical cannabis solves multiple issues. I use it liberally. Valium takes care of the cramps. I think the main reason for the opioids is to relieve the breathing panic.

I know this has been very hard for you since January but focus on your strong faith and that your final destination has been determined.

 

[Jlynn]

Hi Pete, Just checking in with you as I haven't seen a post for a few days anyway. I hope your comfortable. Just wanted you to know that I'm thinking about you.

 

[tripete]

lots of stomach issues but better overall than a week ago. getting strength up to paint or write soon.

 

[Narrowminded]

Great news Pete. Continuing to pray for peace and comfort.

hugs,

Sue

 

[Lkaibel]

That’s great Pete!

 

[Buckhorn]

I am glad to hear you are feeling a bit better Pete!