Trevor49
Member
- Joined
- Aug 8, 2014
- Messages
- 23
- Reason
- Other
- Diagnosis
- 12/2015
- Country
- CA
- State
- Ontario
- City
- Cambridge
Hi,
Last August 2015 I experienced things happening in my spine and in March 2014 I was diagnosed with Dermyotomositis. I went into the hospital and had a rash and they treated for DM. Jan 2016 comes around being on sort of drugs but there was no conclusive evidence that I had DM. Normal blood etc. Hands were getting weak and legs are were already weak but went to neuro in Feb and he noticed changes on the emg but concluded DM. April 22 2016 my legs and arms are weak and problems with swallowing that started in Sept 2015 my neck is stiff. From April 22 my muscles start rapidly getting weaker and Ive losing weight. I have to sit high up to get off a chair. 3 weeks ago I fell on the front steps and my son had to help me up. week and half ago I fell straight forward getting off a chair. Presently I have rounded shoulders can't put on weight, lose breathe when moving and the skin on my arms is just hanging there. My fingers and hands are very weak as with my arms. I can walk a little. My wife and son believe its DM and my neuro is away until Aug 2. My family doctor is useless. I go see a Rheumy tomorrow that put me on prednisone which I've been on for over two weeks but has done nothing for me. He says he doesn't think its ALS but not sure. I have issues getting out of bed. I have pressure sores on my but where I have no more muscle and elbows where the skin is just hanging. I down to 150lbs for 180 and tryimg to eat but no weight gain. everyonr\e is pushing me to walk and exercise but I can't hasrdly move and getting worse. I'm totally lost and pray everyday. help
Trevor
Last August 2015 I experienced things happening in my spine and in March 2014 I was diagnosed with Dermyotomositis. I went into the hospital and had a rash and they treated for DM. Jan 2016 comes around being on sort of drugs but there was no conclusive evidence that I had DM. Normal blood etc. Hands were getting weak and legs are were already weak but went to neuro in Feb and he noticed changes on the emg but concluded DM. April 22 2016 my legs and arms are weak and problems with swallowing that started in Sept 2015 my neck is stiff. From April 22 my muscles start rapidly getting weaker and Ive losing weight. I have to sit high up to get off a chair. 3 weeks ago I fell on the front steps and my son had to help me up. week and half ago I fell straight forward getting off a chair. Presently I have rounded shoulders can't put on weight, lose breathe when moving and the skin on my arms is just hanging there. My fingers and hands are very weak as with my arms. I can walk a little. My wife and son believe its DM and my neuro is away until Aug 2. My family doctor is useless. I go see a Rheumy tomorrow that put me on prednisone which I've been on for over two weeks but has done nothing for me. He says he doesn't think its ALS but not sure. I have issues getting out of bed. I have pressure sores on my but where I have no more muscle and elbows where the skin is just hanging. I down to 150lbs for 180 and tryimg to eat but no weight gain. everyonr\e is pushing me to walk and exercise but I can't hasrdly move and getting worse. I'm totally lost and pray everyday. help
Trevor