• Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here
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wishmobbing

Senior member
Joined
Dec 5, 2017
Messages
871
Reason
Lost a loved one
Diagnosis
07/2017
Country
DE
State
BW
City
Stuttgart
Thank you all so much for your words!
I don't mean to be gone for good and will drop by the forum, read what you're up to and won't spare you the occasional ramblings of a young widow. I'm taking good care of myself. I've learned that I'm okay but thin skinned. Too much stress will get to me directly, without pressure I'm just a happy camper.

Karen, that list is not complete without Gin Tonic. One of his drinking buddies poured some Gin on his urn, hehe.
 

KimT

Extremely helpful member
Forum Supporter
Joined
Nov 18, 2014
Messages
4,795
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
Wish,

I'm sorry for your loss. I know he would want you to get on with your life and have many great adventures. You will always have him in your heart.
 

pdcraig

Distinguished member
Joined
Mar 2, 2013
Messages
101
Reason
Lost a loved one
Diagnosis
09/2012
Country
CA
State
ontario
City
oshawa
Wish, I'm sorry for your loss. Beautiful tribute to your PALS. Sending you peace and strength for the next part of your journey.
 

Lkaibel

Very helpful member
Forum Supporter
Joined
May 9, 2016
Messages
1,528
Reason
Lost a loved one
Diagnosis
06/2016
Country
US
State
MN
City
Minneapolis
I am so very sorry for your loss. What a beautiful and inspirational CALS you have been. Your love shines.
 

swalker

Very helpful member
Joined
Dec 11, 2014
Messages
1,547
Reason
DX MND
Diagnosis
07/2014
Country
US
State
CO
City
Vail
I am so very sorry for your loss. You have brought a special light to these forums and have often lifted my spirits.

Thank you for all that you have done for him and for the rest of us.

Peace be with you.

Steve
 

Angiegal

Distinguished member
Joined
Feb 15, 2017
Messages
309
Reason
PALS
Diagnosis
09/2015
Country
CA
State
Ontario
City
Kitchener
Wish,
My deepest condolences to you. Your posts have been entertaining informative and a joy to read. Take care of yourself. Remember you always have friends here!
Angie
 

Wilson2009

Distinguished member
Joined
May 4, 2017
Messages
285
Reason
PALS
Diagnosis
01/2017
Country
US
State
KS
City
Lenexa
Wish,

So sorry for your loss. Thanks for the many times your insights brightened our world.

Dave
 

JimInVA

Very helpful member
Forum Supporter
Joined
May 29, 2014
Messages
1,013
Reason
Lost a loved one
Diagnosis
04/2014
Country
US
State
VA
City
Poquoson
First, please know that I'm sorry for your loss. I understand that power of MUSIC and am glad it filled you both during this journey. I've always believed that it is not "how long", but "how well" one's story is written. As one's well lived life ends, yours continues on a new path... better for those many years shared. I hope you find a new balance, sooner than later. I also hope you will remember the many lives you've touched, here... all for the better because of your participation. We have been privileged for the pleasure of your company.


And as I've expressed to you other times,


My best goes with you...


Jim
 

Buckhorn

Senior member
Joined
Jan 3, 2016
Messages
730
Reason
Lost a loved one
Diagnosis
12/2015
Country
US
State
PA
City
Small town
Oh, Wish - what a moving tribute to your BF! I admire your spirit, strength and very apparent sense of humor! This paragraph that you wrote particularly spoke to me:

"In a weird way he seemed better equipped than others to deal with the beast and from day one it was all about quality of, not fighting for a long life. He was the Yang to my Ying, we have opposite personalities and I seemed better equipped than others to deal with the beast from my side, conjuring energy and good cheer. His time had come, we'd talked about everything and were ready. Even one more month might have ground us both to bits".

Wow! I felt like I was having my own thoughts mirrored to me! Dave and I were also opposites in many ways, particularly in temperament. We also agreed from the beginning that we would not spend precious time pursuing "miracle" cures or whatever. Dave was content to take The Beast head on and deal with one thing at a time. I followed his lead and just kept peddling uphill. Like you, I have a goofy sense of humor and tried to never lose that around Dave. I failed more times then I would like to admit, but I know I gave him quite a few chuckles everyday. I am so glad for that. Like your BF, Dave never entertained self-pity, anger, never once said "why me", never lost his sense of humor, his interests in reading, movies, sports, etc., and never lost his kind & gentle spirit.

I miss Dave more now (just over 2 months in) than I did in the beginning. I mean, after about 2 weeks of shock or PTSD I just seemed to float into the new reality. Now I am finding my moods and feelings of loss truly are fluid, variable, and dependent upon the memories that are conjured up every day.

I too have the thoughts of separating myself totally from anything ALS related. But I do try to continue to maintain a presence here on the forum because of all the amazingly helpful souls I felt were "with me" throughout. Hopefully I help someone here and there as well.

I'm wishing the best to YOU Wish! Please continue to PM me if you need someone to "talk" to over the many miles. BIG hugs my CALS sister!
 

lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
13,606
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Your bf was wise, Wish, and fortunate beyond words to have had 17 jam-packed years with you, not the least of which found you at his side to play him out.

Best,
Laurie
 
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NothingButLove

Distinguished member
Joined
Dec 25, 2016
Messages
106
Reason
Lost a loved one
Diagnosis
11/2016
Country
US
State
CA
City
Anaheim
Wish, Thank you for all your support and I wish you the best in the future. Also, thanks for sharing your feelings. Your positive outlook on life helps lift the spirits of everyone who reads your posts. Take care...

Rob
 

ThisPresentMoment

Distinguished member
Joined
May 30, 2018
Messages
124
Reason
Lost a loved one
Diagnosis
12/2017
Country
US
State
MN
City
Minneapolis
Wish, I've only been here a short time, but I'm so sorry for your loss, and also grateful that I had an opportunity to read your posts here. I could feel your love for each other and respect your honesty and bravery together in facing the monster.
 

Nuts

Extremely helpful member
Forum Supporter
Joined
Feb 23, 2014
Messages
2,636
Reason
Lost a loved one
Diagnosis
01/2014
Country
US
State
NC
City
Littleton
Wish, you are so very eloquent. I hate that you had to lose him to this, but what grace you both faced it with. You are an inspiration, and I shall miss you. You deserve a life and a future--may the world give you peace and joy as you rejoin it.
Becky
 

texastc

Distinguished member
Joined
Aug 30, 2015
Messages
281
Reason
Lost a loved one
Diagnosis
09/2013
Country
US
State
TX
City
Acuff
So sorry Wish. I'm glad for you and him, that you got to spend the quality time together. Glad he got to say those goodbyes, however painful. So very important...for all of you as well as for him. Godspeed for him. Peace, comfort and healing for you. And much needed, well deserved, rest.
 

Bestfriends14

Very helpful member
Forum Supporter
Joined
May 7, 2017
Messages
1,846
Reason
Lost a loved one
Diagnosis
05/2017
Country
CA
State
AB
City
CALGARY
Wish,

When I saw your post, my heart sunk to my stomach. Your posts have always been positive, supportive and eloquently written. I remember welcoming you to the forum and now, I'm so deeply saddened that your chapter with ALS and your love, is closed so soon.

Having said that, your love is free of this beast, free of pain, free of the chains that ALS imposes on one. Thinking of you during this time, Wish.

Joanna
 
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