Wish Me Luck...

[crystalkk]

Leslie, I agree with you about the specialist they are only looking for what's in their feild.
It is good to hear they finally found the myopathy on an emg. I know you were very worried about
your dianose being wrong. Are you feeling any better.

 

[ltr]

The Prednisone has given me some more energy than I had, which is really good, but the fasciculations became worse when I started it and wake me up in the night. The cramping is pretty bad and the weakness comes and goes. I am also having a lot of vision problems, my vision is changing rapidly. None of my docs agree on my treatment and have mentioned starting methotrexate, so I just got an appointment for a second opinion to Johns Hopkins.I think this is just going to be the way I have to live for now.. Thanks for asking!

 

[vmd]

Lou:

Without loss of strength, as you have correctly stated, it is not going to be MND. Glad to hear of your results.