Shocked by a few things...
1.) I had an EMG at an ALS clinic before so I assumed this would be a step down in the level of the drs and testing. Well this EMG took an hour and a half. About 15-20 muscles. Hands, lower arms,shoulders, biceps, triceps, quads, hamstrings, ankles, calves, and for the first time parasinals and throughout the back.
2.) Absolutely ZERO denervation. This is now confirmed by 3 EMGS from March through today by 3 different neuro(one from an ALS Clinic, one from an EMG specialist at a university based hospital, and one by a local neuro). Also confirmed by a muscle biopsy in July which again showed zero denervation. Zero Fibs, fasics, PSW's again today. Believe me they were looking for them. He would leave the needle in the muscle for a minute and just listen for them. None.
3.) Motor Units were fine again.
4.) Again, the main abnormality was increased insertational activity. Which by itself really means nothing.
5.) He told me I had a few myotonic discharges in a few muscles. What does this mean? You got it, back to possible myopathy which is what the ALS doc told me back in June when he did the EMG.
6.) This Dr was just the EMG specialist, he isnt Dr overseeing me just did the test. He told me it was up to his collegue(the guy im seeing) to find out why im having these twitches and perceived atrophy. HE kept asking his assistant to check my file for CPK levels. He seemed to be very interested in those numbers, but I know they are normal from before.
Overall, Im pretty excited. It really doesnt look like ALS or MND. I mean I have to believe this. I can walk, talk, breath, eat after a year of symptoms. I havent lost strength(that I can tell). I had 3 EMGS but some really good docs and a biopsy. I have the follow up with my Dr to plan on treatment for possible myopathy or whatever he thinks this problem with me is.
What do you guys think?