Wish it was light but...

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affected

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Al, I hope you can check back in again soon and let us know how you are doing recovering at home now.
Sending you many healing thoughts.
 

Clearwater AL

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Get Real
Checking in. Some Improvement since the hospital stay for Aspiration
Pneumonia. They told me recovery may take a few weeks. I’m tired of
being tired and weak but I’ve got to give it more time.

What keeps coming back to me is early on I was told, “Use it or lose it
sooner but don’t overdo it.” So, I’m trying to stay on my feet as much
as possible and walking with the rollator.

After diagnosis I was told I’d probably be slow progression. I probably
bought into that too much and reading the many members here who
seem to be slow progression. The atrophy of my left hand and foot
was something I could learn to work around. The wheel chair, the PWC,
the Peg and hospital bed was something thought to be in the future but
not now.

I got too nonchalant about it all. The two bad falls could have been
avoided. The Aspiration Pneumonia could have been avoided. When
it came time to eat dinner we were in a bit of a rush because we had
someplace to go. Usually I have been very careful eating because of
my swallowing issue. I ended up having a very bad choking spell.
Couldn’t get my breath, kept trying hard to pull in air with food still
in the back of my throat. Started to panic only making things worse.
Finally it cleared. Days later the outcome came to be.

Well now the custom wheel chair is on it’s way (that for now). Our
basement is also a two car garage. The stairs going up to the house
is 7 steps to a platform that turns right then 7 more steps. The stairs
have become too much of struggle for me now. So, the stair lift is on
it’s way. The “future” has now come closer than I expected.

To those who have slow progression… take my story with thought.

Sorry if this is too long or TMI
 

swalker

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Thanks for the update, Al.

Your story has great value to me and I am sure to others as well.

Steve
 

Nikki J

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Thanks for the update Al.

I agree that slow progression can make you procrastinate hope the stairlift helps. Not sure how often you do those stairs. Some time ago I moved from my house which had four levels so stairs constantly. It made a huge difference to my functioning to live on one level. I hope you find similar
 

KevinM

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Yes, Al, thanks so much for the update. I’m sure hoping you get some strength back soon.

And as one with slow progression, I too have procrastinated since I’m still functioning okay. When I was diagnosed the feeling was that I had a faster progression, and I went into panic mode and immediately took care of all financial and paperwork stuff, and then got quotes for a ramp from our driveway to the front porch, along with looking at a couple of van conversions. But when it became more apparent my progression was slow I put everything on hold.

Time to start planning again. Wishing you a speedy recovery, Kevin
 

wmilo

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Glad you are feeling somewhat better, Al. Thanks for the cautionary advice. By the time I switched from the rollator to a power chair the rollator had started to feel unsafe so for me the change wasn't difficult.

Kevin, no harm in getting the financial stuff in order and gathering info on the ramp. Regarding a van, I don't know what you had in mind but when we made our recent van purchase we learned that there have been some changes in that market. It might not hurt to take a look around to see what your local market is like.

Regards,
 

affected

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Thanks for updating us Al, we are all right with you.
I'm saddened that it's all changing on you, seemingly quite fast now.
I hope these things you are putting in place will really help you.
 
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