The good part is we did not spend a bunch of time in limbo, the tough part I think is the power of the shock factor.
O' yea... When the neurologist first suggested my wife had ALS after only two 15 minute meetings, I thought he was a quack. I wanted to punch him in the face. When his diagnosis turned out to be correct, I felt conflicted. Part of me wanted to say, "Thank you for the quick and accurate diagnosis.". Another part of me still wanted to punch him in the face.
Of course I wouldn't ever actually punch anyone in the face. It's just a metaphor for how insanely upset I felt at the time. I have nothing but love for everyone at this point in my life.
Nikki is spot on with the leg braces/afo's thing. They help so much so if your wife does not have them please look into them. I am very sorry this happened to you, but very glad you have found us. AS Nuts says welcome home.
I wanted to PM (private message) ♥ Nikki J about her comment concerning the AFOs and another important question I had for her. However, I think the ability to PM someone is only for people who subscribe. Please correct me if I'm wrong about that.
Concerning AFOs... Yes, my wife actually has four devices to prop up her drop foot. Ironically, the one she likes the least is her fancy Trulife Matrix Max 2 carbon fiber AFO. Her favorite is this $16 one from eBay:
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The thing she likes best about it is you can wear it without shoes. Also, it's easy and quick to put on. I like how the heel is open so it doesn't wear out as quickly. If she was still walking or running, I'm sure the carbon fiber one would be the way to go. At this point, though, she just needs to keep her foot up while making her way to the bathroom using the rollator. For everything else, we use the wheel chair.