Wife Newly Diagnosed with Bulbar ALS & FTD dementia

[soakland]

Hello:

My wife has been recently diagnosed with Bulbar ALS with FTD dementia. She landed in a hospital out of state, and we would like to know the best way to proceed regarding facilities in her home state of FL best capable of dealing with this disease.

Any ideas? Thanks.
Scott

 

[GregK]

At the top of this Newly Diagnosed forum you will see some Sticky topics; start there

 

[lgelb]

A local ALS center or 2 may have some ideas, as will the oncology and pain management units at local medical centers. There are also online directories of SNFs for every county, with info on the levels of care they can provide. As I recall, home hospice was not an option.

Of course, Medicare does not pay indefinitely for such care. You may want to consult with a Medicaid attorney in re funding options, if self- funding is not an option for you.