Stancullen
New member
- Joined
- Mar 3, 2020
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- UK
I’m a 34 yr old male and I’m worried about what’s happening to me, I’ll keep it as brief as I can.
About 12 - 18 months ago I started having a vibrating sensation in my right leg, it then started to twitch occasionally and then the twitching became more frequent and is now every day over a dozen times per day. They slowly started affecting other areas like if it were spreading so to speak, with this I started feeling weakness in my leg then both legs, now with time my whole body feels weak and my entire body twitches especially my left hand which is almost constant daily.
I have twitching in almost all parts of my body and my left hand shakes With my thumb twitching, I have painful cramps in my thighs, back, neck, arms and shoulders.
This has progressed to difficulty in breathing as if I’m breathing through a straw on a daily basis, I feel as though my body is shutting down and I’m now so clumsy dropping things and stumbling and cannot do things I could a year ago and struggle with simple things I found easy 6 months ago.
I have been to my GP a dozen times had normal MRI of entire spine, normal chest CT, a normal brain MRI, normal blood work, normal spirometry
I have tried physiotherapy, chiropractors, ortho, vitamins, medication, injections, message and heat none of which were affective and baffled by my symptoms just keep telling me for a specialist opinion.
I have been referred to neurologist and their secretary stated it’s marked as an urgent appointment although this is a 4 month waiting time in my area.
I feel quite scared as something is very wrong with me and I feel as though my body is shutting down.
Has anybody had symptoms like these that could shed some light on what could be happening to me
About 12 - 18 months ago I started having a vibrating sensation in my right leg, it then started to twitch occasionally and then the twitching became more frequent and is now every day over a dozen times per day. They slowly started affecting other areas like if it were spreading so to speak, with this I started feeling weakness in my leg then both legs, now with time my whole body feels weak and my entire body twitches especially my left hand which is almost constant daily.
I have twitching in almost all parts of my body and my left hand shakes With my thumb twitching, I have painful cramps in my thighs, back, neck, arms and shoulders.
This has progressed to difficulty in breathing as if I’m breathing through a straw on a daily basis, I feel as though my body is shutting down and I’m now so clumsy dropping things and stumbling and cannot do things I could a year ago and struggle with simple things I found easy 6 months ago.
I have been to my GP a dozen times had normal MRI of entire spine, normal chest CT, a normal brain MRI, normal blood work, normal spirometry
I have tried physiotherapy, chiropractors, ortho, vitamins, medication, injections, message and heat none of which were affective and baffled by my symptoms just keep telling me for a specialist opinion.
I have been referred to neurologist and their secretary stated it’s marked as an urgent appointment although this is a 4 month waiting time in my area.
I feel quite scared as something is very wrong with me and I feel as though my body is shutting down.
Has anybody had symptoms like these that could shed some light on what could be happening to me