lhagsjr
Distinguished member
- Joined
- Apr 25, 2007
- Messages
- 173
- Country
- US
- State
- PA
- City
- Philadelphia
I pray to God my ALS specialist is right by saying I dont have ALS(He did a full EMG)but Im having a terrible time believing him right now:
1.) I have been twitching all over since October. And they are going to weird places now.(in between my fingers, side of face, etc)
2.) Im know for a fact I have atropy. Docs say no but they never met me before I went into there office. My arms have lost a lot of muscle. Now, one thing I have to admit, Im not as active as I use to be, mostly because Ive been sick for a year now.
3.) BOTH my shoulder crack and pop. I believe its because of muscle loss, why else would BOTH being doing this? I havent been injured or havent done anything to cause it.
Having a horrible time sleeping because i sleep on my side. After a few hours on the same shoulder i wake up in pain.
4.) Im having a problem breathing sometimes when i first wake up. Im willing to go with this may be stress but how can i be stressed when i first wake up?
5.) Speech issues. Very minimal but there.
I think I will finally, finally, have an answer soon but Im very scared of the answer. Im having an MRI of my shoulder(ordered by regular doc, to see whats up in there). They can see muscle atrophy on an MRI correct?
Also, Im meeting the neurosurgeon tomorrow morning in order to schedule my biopsy. So this will probably be happening soon as well.
Im actually very scared. Can anything good come out of these results?
I have a question about the blood tests. My ALS specialisted ordered some and they all came back clean. CPK, and a couple of others. Would something be whacky on one of those if I had ALS? Im more scared for my wife and family, I have lived in hell for a year now, nothing phases me anymore....
1.) I have been twitching all over since October. And they are going to weird places now.(in between my fingers, side of face, etc)
2.) Im know for a fact I have atropy. Docs say no but they never met me before I went into there office. My arms have lost a lot of muscle. Now, one thing I have to admit, Im not as active as I use to be, mostly because Ive been sick for a year now.
3.) BOTH my shoulder crack and pop. I believe its because of muscle loss, why else would BOTH being doing this? I havent been injured or havent done anything to cause it.
Having a horrible time sleeping because i sleep on my side. After a few hours on the same shoulder i wake up in pain.
4.) Im having a problem breathing sometimes when i first wake up. Im willing to go with this may be stress but how can i be stressed when i first wake up?
5.) Speech issues. Very minimal but there.
I think I will finally, finally, have an answer soon but Im very scared of the answer. Im having an MRI of my shoulder(ordered by regular doc, to see whats up in there). They can see muscle atrophy on an MRI correct?
Also, Im meeting the neurosurgeon tomorrow morning in order to schedule my biopsy. So this will probably be happening soon as well.
Im actually very scared. Can anything good come out of these results?
I have a question about the blood tests. My ALS specialisted ordered some and they all came back clean. CPK, and a couple of others. Would something be whacky on one of those if I had ALS? Im more scared for my wife and family, I have lived in hell for a year now, nothing phases me anymore....