Hi All,
As promised an update.
After what feels like years of waiting I finally got my results through today.
The Neuro didn't call me in to discuss results nor did I receive a copy of the report I just received a copy of the letter that was sent to my referring GP.
The letter stated
"I am please to let you know that Darrens nerve conduction study of the upper and lower limbs is normal and indicates there is no evidence of perhipial nerve issues.
Needle EMG showed minor changes which could raise the possibility of mild left C5/C6 nerve root irritation/impingement.
As you know his brain MRI was normal and cervical spine MRI showed wear and tear with possible impingement of the left existing C6 nerve root.
As such we have found no evidence of any organic disease that would explain Darrens symptoms"
So there it is.... No ALS
Don't get me wrong, I have a big ass demon inside me saying....'but they didn't check your mouth/tounge' or 'but what is the minor changes and have they got them wrong' however I'm fighting that demon and trying to get him to bugger off.
I know I still feel Terriible, my muscles still get extremely weak after very little exercise, my tounge still feels like it's swollen and not responding and a lot lot more. However I,'ll work with what I know. Try to treat the sleep apnea as best I can, lose weight and get healthier and hopefully never have this ALS belief again.
Thank you to all Pals and Cals for listening to my worries and (in the most non insulting way I can say this) I hope I never have to speak with any of you ever again.
God bless all
