affected
Guru status reached
- Joined
- Apr 26, 2013
- Messages
- 16,096
- Reason
- Lost a loved one
- Diagnosis
- 05/2013
- Country
- OZ
- State
- AU
- City
- lala land
Today is seven years since my Chris was set free of the torture that was ALS with FTD.
I'm grateful my younger son happened to be travelling through and stayed here last night and we did nice things together.
I also ran into one of the ladies that worked in the cafe for Chris yesterday (haven't seen her in several years) and we stopped and talked about what an amazing man he was and how working with him had been the best experience in her working life (she just resigned from a job she held since his diagnosis as it was getting her so down).
We talked about how being with him was just one constant stream of talk and laughter, and it felt good to remember the man he was before this monster stole all he loved most.
I have been left with a Chris-shaped hole in my life, but I have been left a better person for having been loved by him, so I'll accept the hole.
The experience after we lose our PALS is beyond words, but there is beauty and joy in the world and time does heal. Takes a damn lot of that time stuff, but it does.
I'm grateful my younger son happened to be travelling through and stayed here last night and we did nice things together.
I also ran into one of the ladies that worked in the cafe for Chris yesterday (haven't seen her in several years) and we stopped and talked about what an amazing man he was and how working with him had been the best experience in her working life (she just resigned from a job she held since his diagnosis as it was getting her so down).
We talked about how being with him was just one constant stream of talk and laughter, and it felt good to remember the man he was before this monster stole all he loved most.
I have been left with a Chris-shaped hole in my life, but I have been left a better person for having been loved by him, so I'll accept the hole.
The experience after we lose our PALS is beyond words, but there is beauty and joy in the world and time does heal. Takes a damn lot of that time stuff, but it does.