Who has been here a long while?

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I'm still here! It's good to see you!
 
Marta, are you an admin of a closed PALS only group on FACE Book? Of so, may I post the link
 
Dani,

I still check in from time to time. I miss a lot of "the old guard". I have fond memories of so many colorful folk.

Kim

p.s. I joined in '08
 
still here, want to finish my poker hand in feb how many still remember that? lot of new ones and some of the old ones have left us but we will continue on
 
kim still here since 07 struggling everyday
 
Still stop by. Lurking.
 
So good to hear from all of you! And glad to see familiar faces, well 'names'. I am on FB but have always kept that separate from ALS. Our friends of course are aware of what is going on, I post brief updates etc, but try to use it for other forms of socialising. I have met so many beautiful people on this forum and have learned all there was to learn about ALS here, not from various health professional who just seem to get in the way these days. Love to all, Dani
 
I agree, Dani. I have learned most of the useful information about ALS caregiving from this site. I first read about it when I came across Joel's website after Gary was first diagnosed and was frantically searching the internet for knowledge, encouragement, and miracles. (I failed to discover the miracle part, except to know that a good attitude is key to living with ALS.)

I don't comment too often, as it always seems everybody else knows more than I do, or it has already been said by someone!

I also sincerely miss some of the old faces who had so much wisdom to offer.... that is not to say new people aren't valuable also. It's just that you make these invisible connections and feel great sadness when they leave or don't post any longer.

Blessing to all.
 
Hi Dani. I check in from time to time. Good to see you here. I'm sorry things are progressing. Take care. Yasmin.
 
why do some post appear and couple days later they are gone
 
sorry didn't go to page 2
 
Hi Dani,

January 2011 checking in....don't log in like I used to, but I try and keep abreast of things offline. Hope everyone is hanging in there! Take care to each and every one!

Ruth
 
@ruthiep:

Hey Ruth,

Thanks for checking in every once in a while.
I was wondering where you were.
I sincerely hope things are just fine for you and your PALS.


Carlos
 
Hi Dani,

I'm still here and joined in 2006. I don't post a lot any more but try and drop about once a week to catch up on some forums. I notice that more recent CALS/PALS have more energy and enthusiasm to post. I'm still doing quite well and remain peg-free. Speech is getting pretty poor but swallowing and breathing are holding up quite well. Still working but that will likely end this fall. I got married 2 years ago and, despite the ALS, have rarely been so happy as I am now.

I miss so many friends here who have left us - Al, Al in Mississippi, Annie, Barry, Beth, Glen, Joel, Irismarie, Richard, and Zenarcher (Jeff) to name a few.
 
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