kitkat
Member
- Joined
- Nov 9, 2015
- Messages
- 21
- Reason
- Lost a loved one
- Diagnosis
- 11/2015
- Country
- US
- State
- MN
- City
- Fairmont
Steve was diagnosed January 2016. I still work fulltime. We have managed to make things work up until now. I would help him dress and eat before I left for work. If I was not going to be able to go home for lunch, I would leave a cut up sandwich & snacks between paper plates with a small zip-lock of ice on top to keep things cold. He cannot use his hands or arms, but would use his teeth to move the bag of ice & the top plate. Then eat like he was in a pie eating contest. This is the way he wanted to do things. But now, I want to get a helper for his personal needs and to feed him while I am at work & I'm so afraid he will fall... Where do we start? Do I call a home health care agency, go thru our local ALS association, hospice??? I'm a wreck over trying to make decisions....