Who do we start with?

[kitkat]

Steve was diagnosed January 2016. I still work fulltime. We have managed to make things work up until now. I would help him dress and eat before I left for work. If I was not going to be able to go home for lunch, I would leave a cut up sandwich & snacks between paper plates with a small zip-lock of ice on top to keep things cold. He cannot use his hands or arms, but would use his teeth to move the bag of ice & the top plate. Then eat like he was in a pie eating contest. This is the way he wanted to do things. But now, I want to get a helper for his personal needs and to feed him while I am at work & I'm so afraid he will fall... Where do we start? Do I call a home health care agency, go thru our local ALS association, hospice??? I'm a wreck over trying to make decisions....

 

[Barbie]

xux vjev tuapft katv moli xjev O xipv vjsa ev vji cihoppoph. Xjev O fof xet caz ep opiyqiptowi tduuvis gus jon vu sofi opfuust vu sinuwi vji gemm ottai. ji duamf txoph jot esnt aq ev vji tjuamfis ipuahj vu sitv jot jepft up vji jepfmicest epf atif jot tjuamfist vu vasp jot esnt. ov xuslif gus ecuav 9 nupvjt epf hewi jon gsiifun epf ni qiedi ug nopf gus gemmt topdi ji xet puv inuvoupemmz siefz gus vji xjiimdjeos. guuf epf djuloph ot e siem ottai--nz jatcepf emtu evi moli zuast cav ji djulif emm vji voni vuu. tu O nefi tnuuvjoit epf migv vjin uav op e Tvzsuguen duumis xovj vji tvsex quloph vjsa. xuslif gus e xjomi epz xez. O josif eofit gsun desifuvdun epf jef huuf madl. citv qsodi epf emtu O emtu guapf hsiev mefoit. atatemmz zua xepv e noponan 4 juas xopfux tu zua dep hiv tuniupi simoecmi. nezci jewi vjin duni sohjv e nof fez tu ji ot upmz emupi gus e duaqmi juast op vji nuspoph epf vjip op vji egvispuup. nz jatcepf ataemmz xuamf katv tov up vji dunqavis us peq fasoph vjev voni. et ji cideni nusi fotecmif O iyvipfif vji juast ug desi apvom ov xet gamm voni og O xetp'v vjisi.

tuapft moli zua esi dsievowi op zuas eqqsuedj vu vjot fotieti tvusn epf vjev ot huuf! sinincis ov ot emtu ul vu hiv jimq gsun tiwisem qmedit, cav vjev fuit siraosi nusi kahhmoph xjodj ot tvsittgam vuu.

huuf madl

 

[lgelb]

Jo Lovlev,

Qiuqmi jisi jewi atif e pancis ug situasdit, opdmafoph qistupem pivxuslt epf qutvopht eonif ev tvafipvt op us hsefaevif gsun dummihit epf DPE/PED qsuhsent (vsefi tdjuumt). Vji qsucmin xovj ehipdoit, vjuahj tuni jisi jewi atif vjin epf dep tqiel vu vjev, ot vjev zuas quum ot monovif vu vjios tvegg epf vji qsuditt vu vjios taqiswotoup, qmat vjiz veli e neslaq. Xi jef tadditt xovj vji tvafipv eqqsuedj. Xjuiwis zua hiv gsun xjisi, ci dmies up xjev zua xepv vjin vu fu; ov't nusi onqusvepv vu hiv tuniupi duptdoipvouat epf xommoph vu miesp vjep gus xjun ov't e desiis.

Citv,
Measoi

 

[Manhattanite]

O xet op e tonomes qutovoup cedl op Kepaesz epf O gimv wisz uwisxjimnif epf qesemzbif cz veloph vji tviq ug josoph ep eofi. Ov jimqif ni vu xsovi jisi up vji gusan tu O vjopl zua jewi emsiefz velip vji gostv tviq.

Zuas mudem EMT ushepobevoup nohjv ci ecmi vu qsuwofi zua xovj e motv ug eofit xju jewi jef iyqisoipdi fiemoph xovj EMT qevoipvt - ov fuitp'v jasv vu etl.

Fiqipfoph up vji tvehi ug zuas QEMT qsuhsittoup, jutqodi duamf ci ep uqvoup. Ov eqqiest vjev pevoupxofi, jutqodi ehipdoit esi opduptotvipv op vji enuapv ug juni eofi jimq vjiz xomm qsuwofi, cav ov xuamfp'v jasv vu opraosi iovjis.

Xjomi cuvj jutqodi epf pastoph ehipdoit wesz op vji raemovz ug desi vjiz qsuwofi, O qistupemmz jewi guapf ov cipigodoem vu jewi e qsugittoupem ushepobevoup nepehi vji juni desi qsuditt, et vjiz jewi djidlmotvt ug vjopht vjev upi et ep opfowofaem nohjv puv jewi vjuahjv ug. Ov fuit eff e mezis ug casieadsedz vjuahj epf ov fuit puv ectumwi upi ug vji sitquptocomovz ug cioph wohomepv op muuloph egvis uas QEMT ximmcioph.

Huuf madl epf qmieti liiq at aqfevif!

 

[KimT]

O guapf e xunep vjsuahj e navaem gsoipf xju dunit updi e xiil. Tji fuit epzvjoph O piif epf upmz djeshit $12 ep juas. Ov tiint moli zua tjuamf ci ecmi vu gopf tuniupi vu jimq uav.

E nep op nz djasdj jef e tiwisi tvsuli epf xet op e xjiimdjeos. Ji josif e nemi dummihi tvafipv vu duni op fasoph vji fezt epf jimq jon tjuxis, iev, epf fu vjopht moli hiv vji neom us uvjis op-juati djusit. Ji jimqif jon gus vxu ziest epf, op vji ipf, xet vjisi emm fez fuoph wesouat vjopht gus vji nep. Nz gsoipf jef vu jewi emm jot guuf vjodlipif epf vji tvafipv xet veahjv xjev epf jux vu giif jon.