heidi michelle
New member
- Joined
- Sep 10, 2007
- Messages
- 2
- Reason
- PALS
- Country
- US
- State
- wa
- City
- lacey
im new here and i need to reach out to anyone whos going through my situation my boyfrind is 35 and was told this last sept we wnt to the nuro dr trying to find out why he was starting to slur hes words once in a while he did an mri brainlooks fine so you have trouble speeking bring a note pad enraged by his attitude i demanded a 2nd opion from a dr who had better eeplinatin they sent us to chicago unv had no clue why they were sending him there top medical? we lived in a small town 6 hrs away well shane mom flew for the app. fromSeattle thats where we were from before moving to hickvill usa! they talked to him for 3hrs drew blood and said they wanted to do emg? the needle test so we spent the weekend cause wouldt you know dr on friday monday we met with them to do test i had to leave the room my daughter age 2 then was scraming and i was 6months preg with our son i come back and they told us he has als and theres no cure WOW two months latermid nov had trouble swallowing choke on food so they put a feeding tube in him end of jan we came back to seattle area so he could be around his mom and familey we got bipap in mar braces in june and a suction machine july and past two weeks he cant stand on his own or walk without me he refuses to use a wheelchair i have been keeping it togher and taking care of him our daughter who now is 3years and a son 9moths but has went down so fast how can somebody be a girlfriend a caregiver but most off a mother to 2 small needy children who cant get for themselfs or begin to understand if anyone has some help for me i need it i dont go anywhere he cant bealone or go to eat or if i do its for a 90sec throw food in cart and get back home so i have no time to attend a support group and the stress and going going has me beging to melt done and 4hrs a sleep at night im glad this web site was here thank you for taking time out of you very full busy day when all you can do is rember to breath!1