Status
Not open for further replies.

miss91

Active member
Joined
Jun 14, 2009
Messages
61
Country
US
State
A State
Hi everyone. I'm posting again because since my July 27 Mayo visit, I have gotten worse. Mayo saw me just 2 months into symptoms. I had blood tests, and an EMG on just one side of my body (the "worse" side). I was told no ALS, no MND, etc. However, I did not get answers for my issues.
Since that time, my foot atrophy has traveled up my leg into the calf and side of the knee. It is measurable, and I feel unbalanced when walking. Fascics continue. My toes are ridiculously far apart, and my shoe is much too large. I can still walk and make myself do so about a mile a day. I also make myself bike ride a couple of miles a day.
I'm still without cramps, haven't fallen, have displayed no UM signs. I'm concerned about my atrophy and fasics, which keep progressing.
My question is: what should I do at this point? I did contact Mayo and told my Dr. (about a month ago) that I was progressing. He said to come back 2 -3 months after my appt. in July to see any progression. I set up an appt. for Sept. 30, but I feel like I've progressed enough since July that maybe I should get in now (receptionist said I could get in earlier if I wanted to).
Also, before I went to Mayo, I set up another appt. with a local neuro for a 2nd opinion. That appt. is on Thursday, but I feel like that might be wasting time/money to go to a local when I have been and will continue to be seen by Mayo....but maybe I should go anyway, just for another opinion.
Basically, I have gone from being just fine in May to having serious problems and obvious atrophy in less than four months. I just hope to get some advice from everyone. You can brush off symptoms for only so long.
 

tmasters

Senior member
Joined
Feb 19, 2008
Messages
531
Reason
PALS
Diagnosis
08/2008
Country
US
State
California
Missy,

I think you should keep the local neuro appointment but don't mention ALS during the visit. Leave him open to figure it out on his own. He may decide to go in a different direction and maybe you'll get some results with a different diagnosed. Seems like there's something going on, but without weakness probably not ALS.

Take care,
-Tom
 
Status
Not open for further replies.
Top

AdBlock Detected

We get it, advertisements are annoying!

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience please take a moment to disable your AdBlocker.

We appreciate your understanding and cooperation!

I've Disabled AdBlock
No Thanks