BethU
Extremely helpful member
- Joined
- May 11, 2008
- Messages
- 2,646
- Reason
- PALS
- Diagnosis
- 05/2008
- Country
- US
- State
- California
- City
- Los Angeles
CB1977 ... I haven't been aware of people saying "I am to afraid to go to the Dr. and why should I because if it is ALS they can’t do anything for me". , but you make a very good point for anyone who feels that way .... that there are many mimic conditions that can be treated, so it's best to find out for sure what's going on.
I'd like to add that if someone has ALS, there are MANY things that can be done to treat symptoms, extend life and improve the quality of life. Swallowing evaluations and guidance, speech therapy, nutrition advice, assistance devices. Most PALS are not sitting around waiting to die. We are figuring out how to keep on keeping on, and most of us are keeping on pretty damn well.
I'd like to add that if someone has ALS, there are MANY things that can be done to treat symptoms, extend life and improve the quality of life. Swallowing evaluations and guidance, speech therapy, nutrition advice, assistance devices. Most PALS are not sitting around waiting to die. We are figuring out how to keep on keeping on, and most of us are keeping on pretty damn well.