notme
Extremely helpful member
- Joined
- Apr 3, 2011
- Messages
- 2,605
- Reason
- PALS
- Diagnosis
- 08/2011
- Country
- US
- State
- Fl
- City
- Orlando
Ok
Each year, tons of money is donated to the MDA association.
Where's it going?
It's not going to a great PAL here in another state with no local ALSA and no power chair she needs.
It's not going to the PALS that have no communication devices and are typing with one finger
it's not going to the PALS that have no respite care and have CALS killing themselves to be 3 people in one.
Just where IS the money going?
Sorry--but I don't see that the money is getting to the folks that need it--those with the diseases!
Some with no insurance can't even get diagnosed or a second opinion! Something is wrong with this picture. Some are in limboland for years--and don't qualify for ANY type of assistance with anything.
Am I the only one that sees this as a problem?
On a good note--I'm hearing more and more ALS ads on the car radio lately--so there are at least some pubic service announcements getting out there.
Each year, tons of money is donated to the MDA association.
Where's it going?
It's not going to a great PAL here in another state with no local ALSA and no power chair she needs.
It's not going to the PALS that have no communication devices and are typing with one finger
it's not going to the PALS that have no respite care and have CALS killing themselves to be 3 people in one.
Just where IS the money going?
Sorry--but I don't see that the money is getting to the folks that need it--those with the diseases!
Some with no insurance can't even get diagnosed or a second opinion! Something is wrong with this picture. Some are in limboland for years--and don't qualify for ANY type of assistance with anything.
Am I the only one that sees this as a problem?
On a good note--I'm hearing more and more ALS ads on the car radio lately--so there are at least some pubic service announcements getting out there.