I do check in every once in a while, mostly when I have a question. But I must admit, at times I avoid it because I am, at times desperately trying to ignore that Tim has ALS and just pretend he just a guy stuck in a wheelchair. Also I sometimes feel embarrassed that I am having such a difficult time adjusting to this when I am so blessed with my experience as an RN, and that we don't have the financial difficulties that so many others do. I have been doing all my husband's care, and trying to finish the house that we built. His daughter has moved from Texas to help with the house work, and my sisters have been amazing. I had to go back to work this August so that I could maintain all my seniority and benefits, and just when we needed it, a dear woman from our church who was trained as an RN became available to be with Tim, while I am at work, and his daughter is at college. I get so many excellent ideas here, on how to take care of Tim. I have been an RN for 32 years, working in an ER mostly and I have never come into contact with anyone with ALS. So I have had to do a lot of research, and ask a lot of questions. Thankfully we have an amazing Physiatrist who's own mother had an ALS type disease, and she has a care plan laid out that is fool proof. Tim is an american VET so has all his equipment and treatment covered. The one thing that complicates things is that he is an American, living in Canada while still waiting for his permanent residency. But there is reciprocal agreement between the two countries dealing with Vets, so we have many benefits. Also we live in a fairly small town in the interior of British Columbia.
I am so impressed with the endurance & ingenuity of the people on this forum. I pray that God blesses all of you, and helps us all through this indescribably difficult time.
