OK, my hubby has heard from 2 neuros that he has MND (PBP to be specific).
The first neuro is the local guy who diagnoses 8 or 9 cases of ALS a year.
The 2nd was the head of neurology at ALS clinic at the University of Colorado.
We are thinking about going to Mayo Clinic to ask for a 3rd opinion.
My questions:
Does it even make sense to get a 3rd opinion?
Are we wasting our time and money & should we just get on with it?
At what point will we (if ever) stop saying "He has been diagnosed with MND" and move to "He has MND"?
How many opinions did you all go to before being able to accept that MND is your future?
What has been your experience with Mayo as a 2nd or 3rd opinion?
We just can't accept the fact yet (when will we know it's a fact?).
Thanks in advance for any advice you might have for us.
COlisa
P.S. Thanks for this forum! I do not know what I would do without it. I have thousands of questions. Be prepared to hear alot from me.
The first neuro is the local guy who diagnoses 8 or 9 cases of ALS a year.
The 2nd was the head of neurology at ALS clinic at the University of Colorado.
We are thinking about going to Mayo Clinic to ask for a 3rd opinion.
My questions:
Does it even make sense to get a 3rd opinion?
Are we wasting our time and money & should we just get on with it?
At what point will we (if ever) stop saying "He has been diagnosed with MND" and move to "He has MND"?
How many opinions did you all go to before being able to accept that MND is your future?
What has been your experience with Mayo as a 2nd or 3rd opinion?
We just can't accept the fact yet (when will we know it's a fact?).
Thanks in advance for any advice you might have for us.
COlisa
P.S. Thanks for this forum! I do not know what I would do without it. I have thousands of questions. Be prepared to hear alot from me.