SpringOwl
Member
- Joined
- Mar 3, 2010
- Messages
- 20
- Reason
- Learn about ALS
- Country
- US
- State
- MI
- City
- Sterling Heights
I have no diagnosis yet. I can no longer use my left leg. I just drag it along. Now I am barely able to use my left hand and arm. My legs and feet are painful all the time but my arm is not. My arm and hand are just weak from the spasticity they have little pain.
I have lots of spasticity in both my legs and they hurt badly all day. I am taking low doses of Baclofen but it makes me so tired - I try to take it after I get home from work.
I have been faking it at work for so long am I am ready to crack. I have gone over the family budget so may times it is futile. My family needs the money. I did look on-line at disability and it said if i am working now and making more than $1,000.00 per month, I do not qualify for SS benifits. I do make more than $1000.00 per month right now.
Besides the pain, the fatigue at work is getting to be too much. I am tired all day but at night I only sleep for about four hours. Sometimes when I am desperate, I take an Ambien. I have no energy and I am really scared.
Yesterday I went to the restroom here at work twice and laid on the floor just to rest.
I am rambling here but my thoughts these days are not to organized.
My doctor is sending me to see a University of Michigan doctor but he said they (U of M) will contact me and it could take a long time to see the specialist. All the "good" diagnosis' have been ruled out. (lyme, vitamin, pinched nerve, ms). My emg was normal which in my mind helps a bit. My body still does not work well. I am not in a wheelchair but some days I wish I had one. I can only walk very short distances.
I have a desk job as a medical biller. I data input claims all day and having a hard time typing. It is just a small mom & pop company and so far I have been able to do the bare minimum but I am really having a hard time. Because this is a small company, there is no disability by law. My hand cramps up when I type and because of the hyperreflexia I have, it is hard to sit still in my chair. My legs are jumpy. I am just taking one day at a time but I am truly miserable every minute.
Just some stories of your personal experience or advice would be helpful.
I am here today at work but I am so anxious all the time. I am anxious about my condition of course but also about my job and how long I can keep this up. I have two children (ages 9 & 10) who need me too. I would like to give the little energy I have to them.
I have lots of spasticity in both my legs and they hurt badly all day. I am taking low doses of Baclofen but it makes me so tired - I try to take it after I get home from work.
I have been faking it at work for so long am I am ready to crack. I have gone over the family budget so may times it is futile. My family needs the money. I did look on-line at disability and it said if i am working now and making more than $1,000.00 per month, I do not qualify for SS benifits. I do make more than $1000.00 per month right now.
Besides the pain, the fatigue at work is getting to be too much. I am tired all day but at night I only sleep for about four hours. Sometimes when I am desperate, I take an Ambien. I have no energy and I am really scared.
Yesterday I went to the restroom here at work twice and laid on the floor just to rest.
I am rambling here but my thoughts these days are not to organized.
My doctor is sending me to see a University of Michigan doctor but he said they (U of M) will contact me and it could take a long time to see the specialist. All the "good" diagnosis' have been ruled out. (lyme, vitamin, pinched nerve, ms). My emg was normal which in my mind helps a bit. My body still does not work well. I am not in a wheelchair but some days I wish I had one. I can only walk very short distances.
I have a desk job as a medical biller. I data input claims all day and having a hard time typing. It is just a small mom & pop company and so far I have been able to do the bare minimum but I am really having a hard time. Because this is a small company, there is no disability by law. My hand cramps up when I type and because of the hyperreflexia I have, it is hard to sit still in my chair. My legs are jumpy. I am just taking one day at a time but I am truly miserable every minute.
Just some stories of your personal experience or advice would be helpful.
I am here today at work but I am so anxious all the time. I am anxious about my condition of course but also about my job and how long I can keep this up. I have two children (ages 9 & 10) who need me too. I would like to give the little energy I have to them.