I was diagnosed in May with a "probable ALS" diagnosis. I worked the last 3 months from a powered wheelchair, because it wore me out so to use a walker in the office. I "retired" officially on the last day of July, and the last visit to the neuro was August 27th. They firmed up my diagnosis as "definite ALS". I am out on company sick leave until the end of October, at which time I will start on company's Long Term Disability insurance. At the first part of November I'll go to the SS office and apply for SSDI and Medicare. I understand that ALS is termed a TERI (terminal) condition, and the SSDI will be "fast-tracked" through the system. From another thread on here, I read that ALS is considered a "presumptive diagnosis" and benefits from SSDI may come rolling in almost immediately.
What prompted me to lay work aside when I did was the need to conserve energy. I did work a desk job, but was kind of stressful at times, and I certainly feel better now without the stress. So, bail out when the energy needed to get up, get ready for work, traffic, just seems to be getting too much, and if you come home at night now, and fall asleep in your easy chair BEFORE supper, then it's time to call it quits.