Will
Active member
- Joined
- Dec 1, 2010
- Messages
- 82
- Reason
- PALS
- Diagnosis
- 11/2010
- Country
- US
- State
- AZ
- City
- Cottonwood
I was on the Rilutek website today, and they state that after 18 months, Rilutek and placebo perform the same. So, does it make sense to get off that drug after 18 months of taking it?
I know many of you do not take it at all, for many reasons, but those of you who do, when is the right time (if ever).
My PALS is in the Medicare system, so the drug is very expensive in the donut hole. But I don't want to see him off if there is a reasonable chance that it is still helping.
I know many of you do not take it at all, for many reasons, but those of you who do, when is the right time (if ever).
My PALS is in the Medicare system, so the drug is very expensive in the donut hole. But I don't want to see him off if there is a reasonable chance that it is still helping.