islandgirl
New member
- Joined
- Apr 7, 2013
- Messages
- 7
- Reason
- PALS
- Diagnosis
- 12/2012
- Country
- CA
- State
- bc
- City
- Vancouver island
Hi i was diagnosed with PLS last year and have had a steady decline. Last week I was at the ALS clinic in Vancouver for follow up. The neurologist was setting up a Respiratory consult.
I have difficulty speaking, have had to modify my food choices to limit choking etc.
I woke up this morning with a nasty headache, and struggled to wake up. As I was in a half wake/sleep state I noticed I dont seem to be taking much air in. Its like my breathe is a sip of air, yet I can take a deep breathe when Im fully awake.
I don't want to panic, but I also don't want to have my partner wake up to a corpse.
Do I need to call the clinic? I hate having people worry but this kinda worried me.
Thx
I have difficulty speaking, have had to modify my food choices to limit choking etc.
I woke up this morning with a nasty headache, and struggled to wake up. As I was in a half wake/sleep state I noticed I dont seem to be taking much air in. Its like my breathe is a sip of air, yet I can take a deep breathe when Im fully awake.
I don't want to panic, but I also don't want to have my partner wake up to a corpse.
Do I need to call the clinic? I hate having people worry but this kinda worried me.
Thx