- May 5, 2008
Hi, my name is Kathy. I’ve been reading posts for the past three weeks; this is my first foray into asking a question. I am 43 years old and was diagnosed with probable ALS in March 2008. I have lost all use of my left arm and hand, and the right hand is losing strength quickly - my question is this - when does the stiffness start? Right now, my hand is atrophied and weak but it is more like jello - than like a stiff board. I experience pretty severe cramps and spasms but they eventually pass. Is this unusual? Did anyone else start out with more flaccid weakness that then became stiff? Thanks in advance for any insights into this process - finding this site has been a god send to me. You are an amazing group of human beings.