1Day@aTime
New member
- Joined
- Sep 30, 2019
- Messages
- 3
- Reason
- CALS
- Diagnosis
- 05/2019
- Country
- US
- State
- IL
- City
- Bensenville
Hi everyone! My brother was diagnosed back in April. We've been told he's slowly progressing and can still walk but with balance issues and has lost quite a bit of strength. He's single and basically doesn't have anyone else in the family to lean on for what are sure to be tough times down the road.
I'm the overly protective big sister. When he was first diagnosed, I was so overwhelmed but quickly came to realize that not every single thing needed to be tackled immediately. I don't want to push him with conversations he's not ready to have even though I know we need to have them (estate planning, trusts, will, home modifications, etc.). So I worry. I want him to be safe (he sometimes pushes himself past his limits) but don't want to nag. So I worry.
I want him to enjoy his quality of life while he still has it, and I worry even more (like when his friend bought him a Nascar driving experience...OMG). I worry that we will run out of time to do the planning, that he will put himself in a bad situation and hurt himself and that I (or anyone else) won't be there to help. I've tried to talk to him about it and he tells me "I'm fine" and that I worry too much. I've told him that it's my job as the big sister to look out for him. How much is too much? How do I know when to push/nag and when to back off? Any advice would be much appreciated!
I'm the overly protective big sister. When he was first diagnosed, I was so overwhelmed but quickly came to realize that not every single thing needed to be tackled immediately. I don't want to push him with conversations he's not ready to have even though I know we need to have them (estate planning, trusts, will, home modifications, etc.). So I worry. I want him to be safe (he sometimes pushes himself past his limits) but don't want to nag. So I worry.
I want him to enjoy his quality of life while he still has it, and I worry even more (like when his friend bought him a Nascar driving experience...OMG). I worry that we will run out of time to do the planning, that he will put himself in a bad situation and hurt himself and that I (or anyone else) won't be there to help. I've tried to talk to him about it and he tells me "I'm fine" and that I worry too much. I've told him that it's my job as the big sister to look out for him. How much is too much? How do I know when to push/nag and when to back off? Any advice would be much appreciated!
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