Grakee1
New member
- Joined
- Jun 10, 2021
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
I’ve held off on posting on your Forum as it seems it upsets many people with this horrible disease. Humbly asking for your thoughts and in regards to my journey.
I’m a 59 year old female and in March of this year I began to experience twitching in both calves. Didn’t think much of it and really never gave it a second thought. After my second Covid shot I experienced some unusual fatigue In my left hand after gardening. As weeks passed it became more weak and extended into the forearm and bicep. Next it traveled to the right hand and again some fatigue. Twitching than moved (periodic twitching) in thighs, arms and twitching in torso. It’s noted with this weakness and fatigue I experienced lots of joint pain (what appears to be) in the elbow and fingers.
I then began to have some hoarseness and possibly an issue with swallowing. Went to an ENT and she scoped my throat indicating that my arytenoids glands were swollen (glands under the larynx ) and she felt that this was due to acid reflux. I was given a prescription for Prilosec which I am on now.
Next I had an appointment with a neurologist who indicated that he saw some Hyperreflexia but it was an all extremities and told me not to worry.
I had a second opinion with a second neurologist who noticed possible atrophy in my left arm, possible weakness (non dominant arm) and ordered an EMG. It came back normal and it was done and all four extremities.
Lastly have been waking up breathless in the middle of the night. Almost like hyperventilating? Also wake up with tightness under ribcage.
Like many others who come to the site and are worried does it sound like anybody else’s story? Thank you so much.
I’m a 59 year old female and in March of this year I began to experience twitching in both calves. Didn’t think much of it and really never gave it a second thought. After my second Covid shot I experienced some unusual fatigue In my left hand after gardening. As weeks passed it became more weak and extended into the forearm and bicep. Next it traveled to the right hand and again some fatigue. Twitching than moved (periodic twitching) in thighs, arms and twitching in torso. It’s noted with this weakness and fatigue I experienced lots of joint pain (what appears to be) in the elbow and fingers.
I then began to have some hoarseness and possibly an issue with swallowing. Went to an ENT and she scoped my throat indicating that my arytenoids glands were swollen (glands under the larynx ) and she felt that this was due to acid reflux. I was given a prescription for Prilosec which I am on now.
Next I had an appointment with a neurologist who indicated that he saw some Hyperreflexia but it was an all extremities and told me not to worry.
I had a second opinion with a second neurologist who noticed possible atrophy in my left arm, possible weakness (non dominant arm) and ordered an EMG. It came back normal and it was done and all four extremities.
Lastly have been waking up breathless in the middle of the night. Almost like hyperventilating? Also wake up with tightness under ribcage.
Like many others who come to the site and are worried does it sound like anybody else’s story? Thank you so much.