Dealing with als for a long time I often wonder what is the most frustrating part about it? So far here is what is winning. After getting over the dignity part of it I haven't been able to since oh probably 2003, and since then seems like I have had thousands do it for me and most are good at it but every so often you get that timid not so sure one that doesn't know how to wipe my butt. Sure they clean up my butt cheeks good enough to kiss but that isn't the part that needs attention. So now I can only nod yes or no for communication (no speech left) they ask is that ok? I nod no several times growing more and more frustrated screaming in my head things like, clean the crack clean the crack. Just a little look into the life of a pals. Remember if you can't laugh about it its winning