PamP
Member
- Joined
- Dec 7, 2020
- Messages
- 11
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- NL
- State
- AM
- City
- AMS
Hi, to keep it brief! 44 yr old mum of two very young kids with twitching down one leg and bum for a few months, had an accident falling down our stairs on bum heavily 8 months ago, twitches seem to be at site of accident and radiating. I notice a loss of muscle mass at back of right thigh also. Had EMG (needle tests), was negative,the right leg made no "noise" on the machine, the left leg did. this worries me as no noise is not good apparently? is muscle weakness needed for diagnosis? I get twitches occasionally elsewhere but not as much as the injury site. i definitely feel the muscle is smaller on the right leg that the left but only the orthopedist has noticed this?
i dont have any movement issues yet, just shrinking muscle and lots of twitches.
The orthopoedic surgeon has offered a bone scan to check nothing else is going on, but if i were to have ALS, as its such a high radiation scan, could this be damaging to my nerves even more. I know it can take a 'long' time to get a diagnoses of ALS...
my other worry is metastatic melanoma as heard this also causes twitching ( as well as other types of cancers) I had a strange lesion a few years back on my shoulder but it went away, though nothing more of it till now...just dont know what to do anymore...finding it hard to be a good mum as cant concentrate on anything else...
Thankyou for your precious time...
i dont have any movement issues yet, just shrinking muscle and lots of twitches.
The orthopoedic surgeon has offered a bone scan to check nothing else is going on, but if i were to have ALS, as its such a high radiation scan, could this be damaging to my nerves even more. I know it can take a 'long' time to get a diagnoses of ALS...
my other worry is metastatic melanoma as heard this also causes twitching ( as well as other types of cancers) I had a strange lesion a few years back on my shoulder but it went away, though nothing more of it till now...just dont know what to do anymore...finding it hard to be a good mum as cant concentrate on anything else...
Thankyou for your precious time...