joelc
Moderator emeritus
- Joined
- Jul 15, 2006
- Messages
- 2,835
- Reason
- PALS
- Diagnosis
- 09/2005
- Country
- CA
- State
- BC
- City
- Abbotsford
I am currently preparing for a trach, not sure how long I can put it off. We are praying for a plateau so we can get used to the idea.
We have appointments May 15th & 17th with the Respiratory surgeon who will be doing the trach and then with the ALS Clinic.
So.......we are rethinking our present living situation and would love everyones feedback and recommendations.
Here is what we are considering;
I always said I would not vent, but was expecting to be in a wheelchair and immobile at that time. Well, I am not even close to needing a wheelchair yet and my kids are pushing me to agree to get one. So, 3 out of our 4 kids live somewhere else. They live close to Vancouver where the clinic is and all the doctors I need to see are and we live in a rural area 8 hour drive away. They are pushing us to sell out and move there where they can help. Our oldest son and his wife, who is an RN, want us to buy a house together so they can be a support to us. She is trained, and deals with people who have vents and pegs.
They want a house with more property so want us both to sell our homes and together buy one on acreage.
I don't like the idea of moving, but we do live a bit isolated and I don't want my wife to have to look after me all alone so we are considering this. My son has already found some properties that would work.
I value your thoughts and counsel. Thanks in advance!
We have appointments May 15th & 17th with the Respiratory surgeon who will be doing the trach and then with the ALS Clinic.
So.......we are rethinking our present living situation and would love everyones feedback and recommendations.
Here is what we are considering;
I always said I would not vent, but was expecting to be in a wheelchair and immobile at that time. Well, I am not even close to needing a wheelchair yet and my kids are pushing me to agree to get one. So, 3 out of our 4 kids live somewhere else. They live close to Vancouver where the clinic is and all the doctors I need to see are and we live in a rural area 8 hour drive away. They are pushing us to sell out and move there where they can help. Our oldest son and his wife, who is an RN, want us to buy a house together so they can be a support to us. She is trained, and deals with people who have vents and pegs.
They want a house with more property so want us both to sell our homes and together buy one on acreage.
I don't like the idea of moving, but we do live a bit isolated and I don't want my wife to have to look after me all alone so we are considering this. My son has already found some properties that would work.
I value your thoughts and counsel. Thanks in advance!