- Aug 4, 2007
- Sylvan Lake
Hi to all, I'm at a loss for what to do and I need some advice. I have been ill for 16 months. Despite having, brisk reflexes, clonus that nerologists have commented on and said was from anxiety I have never been given an emg. I have been given mri, spinal tap,and nerve conduction studies. No doctor would believe me something was wrong because I had just lost my parents, was pregant so they kept trying to say it was anxiety, I never heard of anxiety causing brisk reflexes, clonus. I finally found an excellent gp he does not see this major anxiety only worry for my health. He had sent me to the neurologist in Calagary who teaches the neurology students because he figured this neuro would figure out my problem, they ordered all my files it has been two months and still no answer back from this guy for more tests or anything. I am now at the point my hands and fingers are crippling, my shoulders are rounded, my hips feel like they are seizing up, but the most worrysome is my swallowing and now my jaw won't open as wide as it normally does and gets so tired just from talking, I'm concerned because I need things in place if these things go soon. Really I think I have been lost in the shuffle, I've gone to so many doc's neuro's with them telling me nothing was wrong despite showing brisk reflexes and clonus because they didn't know what was wrong. On al's advice I am going to my Dr. and demand being sent to als/mnd clinic. I am at the point I need these resources in place, my family needs answers so we can make decisions. I just am at a loss, does it take long to get into these clinics? Is it my resposibility to research and tell these neuro's what tests to run, why would I not have been given an emg, I don't understand. I am just starting to panic a little bit with the way my face muscles swallowing are getting. Should I walk into a hospital and say someone help me. I'm just at a loss as to the way I've been treated and I need help from people who are trained to deal with the physical issues I'm having.