Greetings Caregivers,
I need advice from someone who is or has experienced caring for someone bedridden. My mother is in what we believe is final stages of ALS. She is on bipap 24-7. She is on a feeding tube and is unable to speak. She can however write. She cannot walk but has been able to stand from her adjusting and pivot to a wheelchair to go to the bathroom. She has been in her chair both day and night for a couple of months because she says she sleeps better there. Because she can not longer control her bowels I know we will have to put her into bed care since we will not be able to keep her "clean" and changed in a chair. At her current rate will probably be total bed with a couple of weeks because we can barely handle her. Are there any of you caring for someone on total bed care and if so how do you do it? She is on hospice and they bathe her daily and we have a cna who sits with her 10 hours a week but we just don't know what to expect. My dad is 81 but fairly strong and up until now I have been there only about 60% of the time. Help
sass
I need advice from someone who is or has experienced caring for someone bedridden. My mother is in what we believe is final stages of ALS. She is on bipap 24-7. She is on a feeding tube and is unable to speak. She can however write. She cannot walk but has been able to stand from her adjusting and pivot to a wheelchair to go to the bathroom. She has been in her chair both day and night for a couple of months because she says she sleeps better there. Because she can not longer control her bowels I know we will have to put her into bed care since we will not be able to keep her "clean" and changed in a chair. At her current rate will probably be total bed with a couple of weeks because we can barely handle her. Are there any of you caring for someone on total bed care and if so how do you do it? She is on hospice and they bathe her daily and we have a cna who sits with her 10 hours a week but we just don't know what to expect. My dad is 81 but fairly strong and up until now I have been there only about 60% of the time. Help
sass