MupstateNY
Distinguished member
- Joined
- Aug 15, 2022
- Messages
- 424
- Reason
- PALS
- Diagnosis
- 11/2022
- Country
- US
- State
- NY
I'm finally getting my turn at my closest ALS Center tomorrow. Here's what I have on my list to ask about:
Anything I should add to this list?
- Hosp bed with "cardiac chair" (reverse Trendelenburg) position to help stretch your back and use a urinal, among other things.
- BiPAP, for reasons of better humidification, better safety, and a smoother algorithm, I would really try for the Astral for portable NIV, or a ResMed BiPAP at home.
- They connected my BIPAP to a humidifier, provided inline inhaler/nebulizer treatment with my ventilator and also provided chest compression therapy.
- Home modifications
- Relyvrio?
- Liquid Ca and Mg?
- Feeding tube
- hand splint
- Cough assist?
- Suction gadget
- Better keyboard for typing
- Adjust my oval-8's for typing
- Foot brace?
- Check my PT routine
Anything I should add to this list?