What now?

[MJT]

You are loved. I will send positive thoughts to you at noon, 6, and 10:00. I hope you will feel a tiny bit of support.

 

[Bestfriends14]

Thank you @MJT @Jimi , and @affected for your supportive and kind words. It's a tough disease to navigate without overthinking things. @Jimi Alberta does not do trachs as they think it is "barbaric," in the words of the pulmonologist, and my husband does not want one. I'm guessing we just go with the flow with this disease and try to keep him comfortable until it's time. He starts on the AMXYL0035 (sp?) next week and I pray it slows progression.