landofsmiles
Active member
- Joined
- Aug 16, 2010
- Messages
- 90
- Reason
- PALS
- Diagnosis
- 09/2010
- Country
- TH
- State
- Phuket
- City
- Patong
I was diagnosed last week.
Doc has put me on Rilutek and the maximum dose of Vitamin A 800mg and Vitamin C 1000mg he says the body needs per day. Also on Flaxseed Oil 3000mg a day and he tried me on Baclofen to help with the leg stiffness...I was on 4 x 50mg a day but they didn't seem to do anything so he's changed me to Sirdalud/Tizanadine...doesn't seem to help either...both legs paralysed when I wake up and takes ages to get any movement in them.
...and I still take 100mg of Vitamin B12 3 times a day...forgot to ask him if there's any point carrying on with that? Anyway just read on here it's useless if you take it in tablet form!?
Someone has mentioned looking up Creatinine...it helps provide energy to muscle...but I don't see anywhere you can get it. Looks like something that is formed inside the body.
Before I go to sleep I also take a sleeping pill...doc has told me to get off them...why? Also take a couple of painkillers Tramadol.
What are you on and is there anything you take you think makes any difference to you?
Doc has put me on Rilutek and the maximum dose of Vitamin A 800mg and Vitamin C 1000mg he says the body needs per day. Also on Flaxseed Oil 3000mg a day and he tried me on Baclofen to help with the leg stiffness...I was on 4 x 50mg a day but they didn't seem to do anything so he's changed me to Sirdalud/Tizanadine...doesn't seem to help either...both legs paralysed when I wake up and takes ages to get any movement in them.
...and I still take 100mg of Vitamin B12 3 times a day...forgot to ask him if there's any point carrying on with that? Anyway just read on here it's useless if you take it in tablet form!?
Someone has mentioned looking up Creatinine...it helps provide energy to muscle...but I don't see anywhere you can get it. Looks like something that is formed inside the body.
Before I go to sleep I also take a sleeping pill...doc has told me to get off them...why? Also take a couple of painkillers Tramadol.
What are you on and is there anything you take you think makes any difference to you?
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