Ronscatnip
New member
- Joined
- May 25, 2007
- Messages
- 1
- Reason
- PALS
- Country
- US
- State
- NH
- City
- Wilton
Rilutek this is true it really doesn't help much
My husbands wife passed away with ALS and he said it really wasn't worth the cost when there is really no proof that it would help. Just making her life better and happy as long as she was here.
Kathy
QUOTE=Titi Lu]My father was diagnosed recently and I've been persistently researching about Rilutek, and somehow the general idea seems to be that it really isn't much help or worth the side effects.
I should clarify that my Dad has been a lifelong wine enthusiast and according to my research he can't have any alcoholic beverages with Rilutek. Mind you, I know that this may seem as a small sacrifice to make for such an overwhelming disorder/ condition, however this is one of my dad's greatest joys and at this point his enjoyment of life seems to be at the top of my list. Please, illuminate me. I'm just trying to help my Dad make the best of it.[/QUOTE]
My husbands wife passed away with ALS and he said it really wasn't worth the cost when there is really no proof that it would help. Just making her life better and happy as long as she was here.
Kathy
QUOTE=Titi Lu]My father was diagnosed recently and I've been persistently researching about Rilutek, and somehow the general idea seems to be that it really isn't much help or worth the side effects.
I should clarify that my Dad has been a lifelong wine enthusiast and according to my research he can't have any alcoholic beverages with Rilutek. Mind you, I know that this may seem as a small sacrifice to make for such an overwhelming disorder/ condition, however this is one of my dad's greatest joys and at this point his enjoyment of life seems to be at the top of my list. Please, illuminate me. I'm just trying to help my Dad make the best of it.[/QUOTE]