I have read on the forum, of people have stopped taking Riluzole because of side effects. My husband has been on the drug now for seven months, and most of the time he has had upset tummy, which has got worse during the past two months. Although he eats very well, he has lost 44lbs. He decided to stop taking the Riluzole three days ago for a week, to see if it would help him. What has surprised me is that today I have noticed a difference in his speech. I am able to understand him a little better. Mind you I still battle with the words, but when he spells them, I find it a little easier--something I battled with yesterday. Could this be the withdrawl of the Riluzole?. It worries me that he is not taking the drug. He was diagnosed with bulbar onset in Aug 2006. We dont know what to do. Do we continue or not. Any advice from patients who had the same side effects. Thank you in advance
trish
trish