Hi all,
I'm trying to gauge how bad off my mother really is. She and my step father are living their lives as though she'll live another "2-5 years". Not requesting special visits from my siblings who live far away. Not talking with us about her final wishes.
They keep the ALS clinic appointments every 3 months and just recently shared some numbers and told us a little more about her visit with them. The thing that was striking was that her FVC is 20. I am under the distinct impression that it is a very bad number---that she should be gathering family around and getting her affairs in order. They (the clinic) just gave her an Rx for a BiPap.
She has many other symptoms, but this one caught me off guard. Please share your FVC number with me if you'd like. I'm grasping at straws.
Carla
I'm trying to gauge how bad off my mother really is. She and my step father are living their lives as though she'll live another "2-5 years". Not requesting special visits from my siblings who live far away. Not talking with us about her final wishes.
They keep the ALS clinic appointments every 3 months and just recently shared some numbers and told us a little more about her visit with them. The thing that was striking was that her FVC is 20. I am under the distinct impression that it is a very bad number---that she should be gathering family around and getting her affairs in order. They (the clinic) just gave her an Rx for a BiPap.
She has many other symptoms, but this one caught me off guard. Please share your FVC number with me if you'd like. I'm grasping at straws.
Carla