Oakvilleoboy
New member
- Joined
- Dec 6, 2008
- Messages
- 2
- Reason
- Learn about ALS
- Country
- CA
- State
- Ontario
- City
- Oakville
Hey gang
November 2008 after bouts of unexplained twitching in my ancles, feet calfs, biceps (on and off, pulse here and there) for a few weeks, had to go on-line and cyberdiagnose what I had.
You can guess what I came up with. It also made me dig deeper into my family history and confirm that three of my mothers cousins, all brothers from the same family, fought with ALS.
Went to family dr, appointment made (he didn't even know that ALS was), pulled some strings got a Neuro appt. Standard Tests done including EMG: From his report
"Nerve conduduction studies were performed in this upper and lower extremities. These showed some mild decreased velociites of his right tibial, although for the mostpart, these were within normal limits. EMG demonstrated mild fasciculations in left anterior tibial muscle his left gastrocnemius muscle and his left first digit interosseous. His right gastrocnemius also demonstrated some fasciculations"
Question : Does this sound like a "Clean EMG" ?
I didnt think so. He's referred me to an ALS clinic for further eval as "ALS could not be ruled out with certainty" appt set for Feb.
p.s.
New symptoms noticed since include scallopped twitching tongue (white) but can move it ok. Last few normal stationary bike rides, difficulty getting full deep breaths at peak of program on my normal setting. Some nites ackward sleeping on stomach. swallowing seems laboured eg pizza tonight. Twiching there but less frequent and less notiicable.
I have been lifting weights, stretching, excercising - strength stable as far as I can tell. Walking ok. I'm trying to monitor myself all the time till next appointment.
rb
November 2008 after bouts of unexplained twitching in my ancles, feet calfs, biceps (on and off, pulse here and there) for a few weeks, had to go on-line and cyberdiagnose what I had.
You can guess what I came up with. It also made me dig deeper into my family history and confirm that three of my mothers cousins, all brothers from the same family, fought with ALS.
Went to family dr, appointment made (he didn't even know that ALS was), pulled some strings got a Neuro appt. Standard Tests done including EMG: From his report
"Nerve conduduction studies were performed in this upper and lower extremities. These showed some mild decreased velociites of his right tibial, although for the mostpart, these were within normal limits. EMG demonstrated mild fasciculations in left anterior tibial muscle his left gastrocnemius muscle and his left first digit interosseous. His right gastrocnemius also demonstrated some fasciculations"
Question : Does this sound like a "Clean EMG" ?
I didnt think so. He's referred me to an ALS clinic for further eval as "ALS could not be ruled out with certainty" appt set for Feb.
p.s.
New symptoms noticed since include scallopped twitching tongue (white) but can move it ok. Last few normal stationary bike rides, difficulty getting full deep breaths at peak of program on my normal setting. Some nites ackward sleeping on stomach. swallowing seems laboured eg pizza tonight. Twiching there but less frequent and less notiicable.
I have been lifting weights, stretching, excercising - strength stable as far as I can tell. Walking ok. I'm trying to monitor myself all the time till next appointment.
rb
