I am so new at this I am not sure if a am doing it right. I found this site as I was desparately searching for information. My husband (60 yo) has had progressing speech and swallowing problems for over a year now. We kept thinking his symptoms were from a stroke but MRI/MRAs were normal. He had an EMG last Thursday and the nuerologist said that she could not make a diagnosis of ALS yet because it has not progressed to his limbs, but she thinks it is ALS. Now we are left in limbo not knowing what to expect and not hooked into any treatment or support. I just feel numb and constantly on the verge of tears. Has anyone else had this kind of presentation? What can we do to survive? Are there support systems out there for people who don't have an "offical" diagnosis yet? Please help!