what do you think

Status
Not open for further replies.

gooseberry

Extremely helpful member
Joined
Jul 2, 2014
Messages
3,457
Reason
Lost a loved one
Diagnosis
5/2014
Country
US
State
FL
City
Tampa
Max, onset for him is tricky. Fascics started about 4 yrs before diagnosis. Looking back he says he was feeling weaker for a long time with more fatigue before he was diagnosed. When he really noticed things...June 2013. Breathing difficulty, shortness of breath, muscle cramping on a regular basis, difficulty sleeping, waking with headaches sometimes. He was diagnosed May 2014. Started riluzole the day after diagnosis.

Steve can still speak but his breathing makes it difficult....same with eating. He is eating. He can eat a pretty wide variety of food still but it drains him so mostly he is.eating soft food.....and smoothies. He always has a drink/smoothie in his hand.
 

MaxEidswick

Legendary member
Joined
Sep 1, 2013
Messages
5,567
Reason
PALS
Diagnosis
08/2013
Country
US
State
Texas
City
Pinehurst
>He always has a drink/smoothie in his hand.

6 x / day :)
 

gooseberry

Extremely helpful member
Joined
Jul 2, 2014
Messages
3,457
Reason
Lost a loved one
Diagnosis
5/2014
Country
US
State
FL
City
Tampa
He has one now max! Strawberries yogurt, etc since the fruit flavors go down best!
 

davbo49

Senior member
Joined
Sep 18, 2014
Messages
603
Reason
PALS
Diagnosis
04/2014
Country
US
State
kanas
City
kanas
i got one more week to go to get a lab test. i guess that will tell me how the riluzole is doing so far.
 

danrising

Active member
Joined
Mar 26, 2014
Messages
64
Reason
PALS
Diagnosis
07/2013
Country
US
State
SC
City
Gaffney
I have never seen a reason not to take it. Any chance of help is better than no chance of help.
 

davbo49

Senior member
Joined
Sep 18, 2014
Messages
603
Reason
PALS
Diagnosis
04/2014
Country
US
State
kanas
City
kanas
that's what i was thinking. what do i have to loss from it.
 
Status
Not open for further replies.
Top