Loverly
Distinguished member
- Joined
- Oct 28, 2014
- Messages
- 197
- Reason
- Lost a loved one
- Country
- US
- State
- CA
- City
- Orange County
K has had two infections on the last two weeks, uti and conjunctivitis. Both times I spoke with the doc on call instead of her regular physician. Both times they wanted her to come into the office for diagnosis, despite my explanation of her physical condition due to ALS. One nurse was exceptionally rude, "Are you just going to let her suffer?" she asked after I explained it would take monumental effort to bring K in.
It seems no one understands the realities of this disease, or they just don't care? I know I can't diagnose everything, but a UTI? It's not like I was trying to convince them to give me chemo over the phone.
What do you do when your PAL has to see a doc? Are there services that provide home visits?
It seems no one understands the realities of this disease, or they just don't care? I know I can't diagnose everything, but a UTI? It's not like I was trying to convince them to give me chemo over the phone.
What do you do when your PAL has to see a doc? Are there services that provide home visits?