duplinwino
Distinguished member
- Joined
- Mar 14, 2007
- Messages
- 101
- Reason
- Loved one DX
- Diagnosis
- N/A
- Country
- US
- State
- NC
- City
- Pittsboro
It's been weighing heavily on my mind these past few days as my husband gets weaker and weaker and I wonder how much longer he will be able to stay home alone safely. He lost use of his right arm some time ago and his legs are unstable, though he's not in a wheelchair yet, I don't think it will be too much longer. His left shoulder has atrophied so he's not able to raise his arm and the muscles in his hand are becoming weaker. When he loses his left arm, he will be very dependent of course. He has no swallowing, chewing, or respiratory issues, only weakness in his limbs.
I work full time, always have. I carry my, his and our daughter's health and dental insurance (Medicare kicks in for him July 1). We won't be able to make ends meet with his SSD payments. I have to work. But I also need/want to be able to take care of my husband.
I know with 100% certainty that he will not allow someone in our home to help him when he really doesn't like that I have to do it and becomes pretty cantankerous. And truth be told, I don't want that. I want to be his main caregiver while I can handle it.
Any creative ideas, suggestions, thoughts are appreciated!
I work full time, always have. I carry my, his and our daughter's health and dental insurance (Medicare kicks in for him July 1). We won't be able to make ends meet with his SSD payments. I have to work. But I also need/want to be able to take care of my husband.
I know with 100% certainty that he will not allow someone in our home to help him when he really doesn't like that I have to do it and becomes pretty cantankerous. And truth be told, I don't want that. I want to be his main caregiver while I can handle it.
Any creative ideas, suggestions, thoughts are appreciated!