Hi everybody,
I want to share with you my symptoms. I am 27 years old. Since January 2007, so a year now, I wake up in the middle of the night with my hands benumbed, not insensitive because I can feel and move them, but like the blood is not circulating inside. In the palm, or only the two last fingers, or all the fingers, at left or right hand, only the palm, or up to the elbow, or sometimes all my hand. At the beginning this was not painful, and rather a light symptom, but in months it become more intense, and painful, and seems also like creeps, like stiffed, or like an interior burning of the meet/muscles, and it goes away rather fast in one or two minutes, when I repeatedly open and close my fist. Lately, my flesh inside hurts, like it is burning or like it is stuck, like strained. This is happening only in my sleep not only at night but also in the rare times when I sleep at noon.
Two weeks ago my big finger from one foot also had this symptom. More recently it is more like having needles in my hand, palm, or arm. Only a few times, 3-4 my hand was like a wood, like an object, completely, and only two or three times it was like heavy, especially in the biceps. But this is very rare, while creeps and numbness I have almost all nights, more or less intense. Two nights before I woke up with al my hand very contracted, and very rigid, and like burning, hot.
Rarely, when I stay in bed or on a chair, one of me feet is completely in the situation like blood is not circulating at all inside, but it is very painful after.
Also, sometimes, not so often, I have, when I am awake, a kind of very light muscular spasms or fasciculation: a small part of one of my muscles (biceps, of the muscle up on my knee, of my eyelid, or a small one over one rib, etc, but this doesn't hurt at all, it's only extremely annoying, and never had that before.
Also, I have often sensations of cold, and light frissons, and especially cold sensation all along my spinal column.
I also have sometimes a imperceptible from outside kind of tremble, shiver. It is a trembling that I can feel inside. Sometimes also my hand is trembling, specially the right one where the symptoms at night are more intense, or my fingers are trembling, but not so often.
Also I fell my hands a kind of weakened, especially after I have those crisis at night, but they recover, and I can perfectly use them. Sometimes I feel tired.
I have been to several neurologists that told me these are not neurological symptoms (?) and argue that my 3 EMG that I took are in normal limits, and show no neurological dysfunction. I do not trust them very much. Also, they are not telling me anything on what that might be. And because my last year was a nightmare and I am very scared that it might be ALS, they are only giving me anti-stress medication, as if it might be good at anything...
Not only I fear I know what it is, but I also think that whatever it is, including ALS, it acts like the result of a virus or something similar, because some of this manifestations are very similar to someone that had ALS and there are some (too easy ways), that it might have been transmitted to me.
Your opinions would help me, I also read other people here have similar symptoms. Also I want to go in other country to have some proper examinations, I do not know were to go and how to find a really good neurologist. I was also wondering if a magnetic resonance test of the spinal and brain might show something, because the EMGs I took seem to be normal...Anyway, what I feel is far from being normal, funny or to give me the impression that will dissapear with a tea or aspirin...
Thanks,
I want to share with you my symptoms. I am 27 years old. Since January 2007, so a year now, I wake up in the middle of the night with my hands benumbed, not insensitive because I can feel and move them, but like the blood is not circulating inside. In the palm, or only the two last fingers, or all the fingers, at left or right hand, only the palm, or up to the elbow, or sometimes all my hand. At the beginning this was not painful, and rather a light symptom, but in months it become more intense, and painful, and seems also like creeps, like stiffed, or like an interior burning of the meet/muscles, and it goes away rather fast in one or two minutes, when I repeatedly open and close my fist. Lately, my flesh inside hurts, like it is burning or like it is stuck, like strained. This is happening only in my sleep not only at night but also in the rare times when I sleep at noon.
Two weeks ago my big finger from one foot also had this symptom. More recently it is more like having needles in my hand, palm, or arm. Only a few times, 3-4 my hand was like a wood, like an object, completely, and only two or three times it was like heavy, especially in the biceps. But this is very rare, while creeps and numbness I have almost all nights, more or less intense. Two nights before I woke up with al my hand very contracted, and very rigid, and like burning, hot.
Rarely, when I stay in bed or on a chair, one of me feet is completely in the situation like blood is not circulating at all inside, but it is very painful after.
Also, sometimes, not so often, I have, when I am awake, a kind of very light muscular spasms or fasciculation: a small part of one of my muscles (biceps, of the muscle up on my knee, of my eyelid, or a small one over one rib, etc, but this doesn't hurt at all, it's only extremely annoying, and never had that before.
Also, I have often sensations of cold, and light frissons, and especially cold sensation all along my spinal column.
I also have sometimes a imperceptible from outside kind of tremble, shiver. It is a trembling that I can feel inside. Sometimes also my hand is trembling, specially the right one where the symptoms at night are more intense, or my fingers are trembling, but not so often.
Also I fell my hands a kind of weakened, especially after I have those crisis at night, but they recover, and I can perfectly use them. Sometimes I feel tired.
I have been to several neurologists that told me these are not neurological symptoms (?) and argue that my 3 EMG that I took are in normal limits, and show no neurological dysfunction. I do not trust them very much. Also, they are not telling me anything on what that might be. And because my last year was a nightmare and I am very scared that it might be ALS, they are only giving me anti-stress medication, as if it might be good at anything...
Not only I fear I know what it is, but I also think that whatever it is, including ALS, it acts like the result of a virus or something similar, because some of this manifestations are very similar to someone that had ALS and there are some (too easy ways), that it might have been transmitted to me.
Your opinions would help me, I also read other people here have similar symptoms. Also I want to go in other country to have some proper examinations, I do not know were to go and how to find a really good neurologist. I was also wondering if a magnetic resonance test of the spinal and brain might show something, because the EMGs I took seem to be normal...Anyway, what I feel is far from being normal, funny or to give me the impression that will dissapear with a tea or aspirin...
Thanks,
