What Can I Look Forward to

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Vicki S

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Joined
Jan 2, 2008
Messages
32
Reason
PALS
Diagnosis
09/2007
Country
US
State
Alabama
City
Daphne
I was diagnosed on Sept. 11, 2007. It started in my toes and ankles. I have some weakness in my calves which makes fall backwards a lot. I'm on relatek and I want to know about how fast this disease will progress. I also want to know where I can expect to appear next.

Vicki S.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hi Vicki. I am sorry to hear about your DX. Wish there could be some definate answers for you, but everybody is so different. We have had PALS around here who have been lving with ALS for 15 years, and everybody claims that a positive attitude makes a big difference no matter what the future holds. but I can see your wish to be able to plan. I just wish there were simple answers. Cindy
 

Vicki S

Active member
Joined
Jan 2, 2008
Messages
32
Reason
PALS
Diagnosis
09/2007
Country
US
State
Alabama
City
Daphne
Thanks Cindy. It really is hard to plan when you don't what's going to happen or when. I live each day as it comes. It's my husband who is my caregiver that is so worried. I try to tell him when it gets bad he can some help. All my family lives in St. Louis and I live Alabama. My husband keeps asking if I want to move back but I don't. I love her and have made so many friends here.

I don't let the AlS keep me down. I read, paint, play video games and sing karaoke two nights a week. I go to lunch with my friends and to the movies. I go to my painting chapter meetings and plan to go to convention. I hope I'm still mobile by May or June because thats when the convention is.

Vicki
 

Lorie

Senior member
Joined
May 17, 2007
Messages
546
Reason
Loved one DX
Country
Uni
State
Alabama
City
Mobile
Vicki

Vicki,
Cindy is right. We are basically Veterans at this. My brother Timothy had symptoms for 7 years prior to his confirmed diagnosed in March of 05. He is very positive and has a wonderful attitude. Please check out Bert, my friend that has had ALS for 25 years, He lives in Satsuma and has just written a book on ALS and other terminal diseases. He has one especially for me to come pick up from him. He is one of my Biggest Inspirations!

http://www.bertwoodard.com/

Also I can give you info on a Rehab Service that came out today and measured Timothy for a New Power Chair. They are wonderful.

I HAVE LOTS OF INFO FOR YOU!


Lorie:-D
 

AngelManFL

Active member
Joined
Sep 30, 2007
Messages
98
Diagnosis
11/2007
Country
US
State
FL
City
Tampa Bay Area
You Have the ENTIRE World to look forward to!

Vicki this is not the end - it is just a new and different chapter of your life. Look back on your life and see the different changes and chapters that have already occurred in your life, this one is just different and will cause you to look deeper into yourself - but you have everything to look forward to - and with the friends and information you will meet and find through this forum or maybe other channels in your life - you will find so much more to look forward to... Hope this helps a little...
 

Thumbs Up

Active member
Joined
Nov 22, 2007
Messages
95
Reason
Lost a loved one
Country
ca
State
Ontario
City
Northern Bruce Peninsula
Vicki,
Cindy is right. We are basically Veterans at this. My brother Timothy had symptoms for 7 years prior to his confirmed diagnosed in March of 05. He is very positive and has a wonderful attitude. Please check out Bert, my friend that has had ALS for 25 years, He lives in Satsuma and has just written a book on ALS and other terminal diseases. He has one especially for me to come pick up from him. He is one of my Biggest Inspirations!

http://www.bertwoodard.com/

Also I can give you info on a Rehab Service that came out today and measured Timothy for a New Power Chair. They are wonderful.

I HAVE LOTS OF INFO FOR YOU!


Lorie:-D

Everyone on this forum is amazing.
 
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