nona
Senior member
- Joined
- Oct 1, 2018
- Messages
- 555
- Reason
- PALS
- Diagnosis
- 02/2015
- Country
- US
- State
- NH
- City
- New London
I'm approaching the six year mark and I'm emotionally and physically exhausted. I am considering going on hospice in part because I have it in my head that there will be more assistance for my caregivers and support for a catheter to reduce transfers. Transfers are painful for me and risky for my posse. I'm trying to decide if I should go on hospice or try to find a whole new caregiving team, or some combination of the two. I use a bipap at night but my breathing is fine in the daytime when I'm upright in my chair. I have also heard that Medicare won't cover my enteral formula on hospice. What about Nuedexta?