slimcooper2002
New member
- Joined
- Jan 10, 2016
- Messages
- 1
- Reason
- Loved one DX
- Diagnosis
- 04/2012
- Country
- US
- State
- Ca.
- City
- Benicia
Hello Everyone, Im not sure if this is the correct forum, I hope so. My little sister was diagnosed with ALS almost 3 years ago. It has progressed to the point that she has to use a wheelchair and she keeps falling to her left because her diaphram is so weak. She can barely stand and needs something to hold onto if she does. She has a bag for her waste. On top of all the things shes dealing with, her husband has given up on her completely, he wont help her do anything and only feeds her 1 meal a day. He converted a room in their house for her to stay in so basically he has one side of the house and she lives on the other. He doesn't clean her side at all and doesnt check on her unless she calls him. She is badly bruised all over her body from falling down, and when she does fall it sometimes takes hours for her to get back in bed by herself. She has a therapist that comes in a couple times a week, but she doesnt bath her or take care of her needs. She said this week a social worker was supposed to come with the therapist kind off undercover to see how she is being treated as they suspect abuse. My family takes care of her most of the time but sometimes nobody sees her for a few days at a time. She wont call for help because she doesn't want to be a burden. She needs to be in a place that will take care of her but shes stubborn and shes worried that as soon as shes out of the house her husband will throw all her stuff in the trash and get rid of her dog. She wont leave her dog with the husband. I want to do something for her but not sure where to turn, we've talked about breaking his legs or something but that wont help, just make us feel better. We just want the rest of her time to be as comfortable as possibleI live about 80 mi. from her and see her once a week, and Ive told her to call anytime if she needs anything. Any advice would be greatly appreciated
Thank you
Thank you