jaura
New member
- Joined
- Jul 27, 2015
- Messages
- 5
- Reason
- Friend was DX
- Country
- US
- State
- NJ
- City
- Leonia
Hello,
One of my best friends of 40+ years was just diagnosed last week with Bulbar Onset ALS and I want to help him in any way I can. We live about 50 miles apart and he is soon to return home to live with his mother. He is 60 years old and cannot speak at all. He is using a walker and must give up his profession as a private teacher of music. This has been a gradual progression of symptoms since only last fall and I didn't even know about it until June. He will be living only 2 hours from the Johns Hopkins Medical Center but is intending to become a patient instead at the clinic at West Virginia University, which is a lot closer. My question is; even though WVU is an official ALS clinic, wouldn't the JHU Medical Center be a better choice? I want to know from anyone of you who would know because I don't feel comfortable trying to direct his personal care. But if it seems that there is a big difference then I think he should go for the very best. He has had no second opinion, by the way.
Thanks so much.
One of my best friends of 40+ years was just diagnosed last week with Bulbar Onset ALS and I want to help him in any way I can. We live about 50 miles apart and he is soon to return home to live with his mother. He is 60 years old and cannot speak at all. He is using a walker and must give up his profession as a private teacher of music. This has been a gradual progression of symptoms since only last fall and I didn't even know about it until June. He will be living only 2 hours from the Johns Hopkins Medical Center but is intending to become a patient instead at the clinic at West Virginia University, which is a lot closer. My question is; even though WVU is an official ALS clinic, wouldn't the JHU Medical Center be a better choice? I want to know from anyone of you who would know because I don't feel comfortable trying to direct his personal care. But if it seems that there is a big difference then I think he should go for the very best. He has had no second opinion, by the way.
Thanks so much.