tabney
Active member
- Joined
- Jan 15, 2007
- Messages
- 53
- Reason
- PALS
- Country
- US
- State
- ky
- City
- Shelbyville
:? I am basically looking for someone to listen. This is a horrible way to live your life. In fear of every twitching muscle because you know the muscle is slowly dying. The twitching is just a reminder. I am in the final process of diagnosis. You know the one, where your neurologist is seeking any other answer but the obvious one. No one wants to hear ALS. It could be one of those words whispered like c a n c e r. I had hope that I would be diagnosed with PLS. What a thing to be hopeful of, but better than its big brother, so hope none the less. PLS does not involve the lower motor neuron and I have lower involvement. There goes that hope. I am not upset but frustrated. Such a long process to reach a diagnosis. Exhaustion is already a part of this disease and then you have to go through an exhaustive battery of test to find out why you are always so exhausted. Quite tiring I must say.....:mrgreen:
Want to know my biggest fear.....my Mother. The way this disease will affect my Mother.
She took such wonderful care of my Father during his battle with (whisper) cancer. In the latter stages of his illness, he was totally dependent upon her. Feeding, bathing, and bodily functions. I am in fear of the bodily functions. I would rather die than have my Mother have to deal with changing a diaper I am wearing because I can no longer
go to the restroom. Don't get me wrong, she would never say a word. She would climb mountains and walk miles if it would help/benefit one of her children. I am the one who
is unable to deal with that possibility/inevitable likelihood.
I just want to cry.....
Want to know my biggest fear.....my Mother. The way this disease will affect my Mother.
She took such wonderful care of my Father during his battle with (whisper) cancer. In the latter stages of his illness, he was totally dependent upon her. Feeding, bathing, and bodily functions. I am in fear of the bodily functions. I would rather die than have my Mother have to deal with changing a diaper I am wearing because I can no longer
go to the restroom. Don't get me wrong, she would never say a word. She would climb mountains and walk miles if it would help/benefit one of her children. I am the one who
is unable to deal with that possibility/inevitable likelihood.
I just want to cry.....